A Different Perspective . . .

Last Monday at our support group meeting, we had the pleasure of having two guest speakers.  A young lady who has recovered from her eating disorder and  her wonderful mother.  They were able to provide the group with a perspective only derived from someone who has "been there, done that".

During their nine year journey the mother watched her daughter struggle to gain independence over her eating disorder and the daughter finally reached a point where she got sick and tired of being sick and tired. 

The meeting was emotional on so many levels.  I think the one realization that is hard to come to grips with as a parent is that this is their journey, their path and they must choose their recovery.  Each family dynamic is different, however, and we must always be ready to intervene when it is medically necessary.

I am listing below the comments I received from parents following the meeting.   I asked for their "ah-ha" moments.  If we can find a way to look at this differently, change our perspective, it can be very valuable.  Here is what they had to say --

One statement that resonated with me was that even though sometimes she would tell her mom she was "fine", her mom would know that she wasn't really fine some days. Her mom would make it a point to be there with her daughter.  She seemed to be comforted by the presence of her mom. Even if she didn't realize it at the time, she seemed grateful for that now.

Say I love you, and I believe in you.

Never answer the question "how do I look?"    Simply respond by saying “I am not going to respond to that question.”

Don't engage the ED behaviors - walk away.

Keep meal conversations on the light side.  She said she was already stressing out with food issues and didn't want to talk about that.

Mom said one of her hardest realizations was knowing that ultimately her daughter was the only one who could control her recovery.

She  said she wished she had signed up for more activities when she started college as a means of distraction, or to stay socially engaged.

 When you see your daughter is feeling low, bad, anxious, take a moment not to talk about ED or "it". Never bring that up or ask about it unless she does and then just let her talk.   Just say to her, " I believe in you; I love you; and I know  that you are working through everything that you need to in order to be well."

 Even though she may not want food care packages when she is away at college, she does want notes, cards, silly fun games or puzzles, fuzzy socks etc.  They are reminders that she is loved and supported always.

 Food is stressful,  don't ever use meal times to talk about heavy topics (i.e., grandmas illness, tasks that need to be completed, problems between siblings, etc.) Keep meal times fun with light conversation, talking about funny YouTube videos, silly pet shenanigans, family vacations, etc.

When she yells at you that she is FINE and needs hers space and to just get off her back, she is probably NOT ok.  FINE may stand for screwed up, insecure, not ok, neurotic, emotional.   When she says that and she's most angry, tell her you love her and believe in her. Tell her that you are here to listen.  Play scrabble, take a walk.  Don't talk about “ED” or “IT”.   Let her talk if she will.  IF she won't talk, then give her some space and then say it all again later.

It may take a day or two for her even to talk to you and it may not be about what's bothering her but she knows she is good and loved and capable and that you haven't given up on her.

 If your daughter asks you if she looks fat in an outfit or asks you to comment on how she looks, DO NOT say you're always beautiful, or you look great or fine,  just say, " I'm not answering that question." DO NOT ENGAGE  in that conversation, as it can be very triggering.

During recovery struggles or transitions (coming home from college for the summer, holiday breaks, etc.) it is ok to simply not buy binge trigger foods.  Let her work with her counselor or buy the item(s) herself as she feels ready to take that challenge.

 When your daughter is having a bad day or a relapse,  that may be when she goes back to her meanest outbursts....when she does that,  she is most likely/comfortable responding like she would at the age of the beginning of her diagnosis.  If she began her disorder at 14 and she's been in recovery for 3 years and has a bad day, she may yell at you in the way a 14 year would instead of a 17 or 18 year old. The emotional maturity seems so be slower but don't lose hope, it does happen, just slower.

She said just having her family be there and not necessarily saying something to them when they are upset or having a bad day/battling ED. 

Keeping her busy after a meal!  Going for a walk, playing cards or her playing the piano .

 

You will notice some of the "ah-ha" moments are very similar.  This tells me our struggles are the same in many ways.   We experience the same heartache, the same frustration and the same sadness at feeling so utterly helpless. 

 

I learned many lessons during my daughter's struggle with anorexia.  I realized it was not my fault; however, I did contribute to it's longevity (with the best of intentions, mind you!)  As stated above, it is important to not engage the behavior.   It is not easy.  The whole situation makes no sense to us; however it shouldn't make sense.  Eating disorders are not sensible!  They are ruthless and destructive.  Don't let it bring you down, too.  Do not give it any more power than it already has.  Stand strong and do not be afraid.  Take the wind out of it's sails.  Take it one day at a time, one moment at a time.   This is a marathon, not a sprint.  Remember to breathe, remember to pray, remember your child is there and fighting to find their own voice, struggling to trust themselves again.